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I Have An AutoImmune Disease

Comments 50

  1. I'm in medical school, but I also have an autoimmune disease myself. Living with an autoimmune diseases is an everyday struggle, but being on the other side now, I'm seeing how different these diseases present in different people. I've been the frustrated patient before, but I promise doctors are trying their best! Science just hasn't caught up to how crazy and unique everybody's bodies are. Kudos to you guys, it's admirable to go through life with a chronic illness!

  2. Macy I’m glad you can do anything everyone else can but sadly that’s not the case for lots of people with chronic illnesses. Some of us can’t even shower on our own.

  3. I don’t have an autoimmune disease but I suffer from other chronic illnesses. I suffer from POTS, CFS/ME, IBS, fibromyalgia, and endometriosis. We all need to support each other! Sending everyone spoons 💖

  4. Lupus is so hard to live with. I feel really bad for the woman in the video who has it. Also called the disease with 1000 faces because symptoms differ from person to person. My mom had it, and she had cold sores in her mouth, random bleeding (that was hard to stop), constant hospitalizations for low platelets, rashes all over her body and neck and arms, petechiae (blood leaking from capillaries), constant headaches, EXTREME bruising, and eventually passed away due to bleeding in her brain (wouldn't clot, low platelets). It's tough living with it. I feel for people who struggle with lupus. There are so many symptoms when it flares up and it's always a scary time.

  5. I have Multiple Sclerosis another autoimmune disease and it's cool to see young people talk about their autoimmune diseases (I'm 23) and a lot of the MS get togethers or events are filled with people who are a lot older than me (40's/50's/60's) and so on.

  6. Today my husband had to help me dress after my shower but yesterday I was able to take my daughter to a play centre and drove my car for a bit. Every day is different and there are always ups and downs. The most frustrating thing is even if you have a diagnosis it could be wrong or your meds don't work. It's a thing you constantly have to work on.

  7. Also Crohn's disease.
    The number of times people have told that I am so lucky to be so skinny…
    However, in all honesty, I have been incredibly lucky. My family are wonderful and supportive. I was diagnosed at 13, and my family all changed their diet when I was diagnosed. We are all healthier because of it. It influenced our career choices and helped us find fulfilling jobs we would have never considered without Crohn's impacting our lives.

  8. If any of you want to actually learn about these diseases, check out Osmosis videos (they're for med students) really good to understand what is actually going on with these people.

  9. This is what my channel is all about! My channel has so many spoonie viewers and we've created such an amazingly supportive community. I have an autoimmune disease called Sjogren's Syndrome, among other things. I vlog about my life as a spoonie mom.

  10. I have Sclerodermia circumscripta and Sunct-syndrom and that whole 'im not my disease' thing? Yeah, doesnt work for me. I am 5 panic attacks in a trench-coat and a fuckton off issues.

  11. I feel so sorry for all the misdiagnosed people. Last year ( a couple of months ago) I stayed in a hospital far away from my family. I've been there for three months and I had one emergency surgery and a few weeks later 2 other ones. When I went back home they still didn't know what's wrong with ma body. All in all , it took me about 8 months to figure out what's going on. Be strong !😄

  12. I have celiac disease and ehlers danlos syndrome and this video means so much to me. Autoimmune diseases and invisible illnesses aren't visible to others and it's hard to remember that you're not the only one going through these things. I've also always been worried my flare ups would prevent me from holding a successful job and seeing these people that work at buzzfeed, gives me hope.

  13. I have two autoimmune diseases – Ulcerative Colitis and Fibromyalgia, I agree with what they are saying in the video. It takes a long time for these things to be figured out – my UC took 3 years from what I believe was the onset to diagnosis and a treatment that worked. Most of that time was spent not knowing why I was broken. However, if you are experiencing the same kind of problems keep trying eventually you'll find the right doctor, right drug, right dosage. It just takes one doctor who believes you to make a positive change.

  14. It was so important. Thank you. I have IBS – it may be not autoimmune, but it is chronic and it is terrible. Not only all the issues but terrible pain and low quality of life …also depression and general anxiety, with stomach pain and migraines – like psychosomatic stuff that makes it so hard to cure. And terrible periods and PSM that is so savage like you feel like wanting to kill yourself and like fainting, then crying out loud and feeling so aggressive and angry – every month till period starts and then feeling so bad and experience such pain and issues that period is like the death sentence. Like….Life is hard, man. And doctors just say "loose weight", "eat greens" or "take vitamin D" or "just take stronger ibuprofen" – like you feel so isolated and helpless…It is fucked up.

  15. I’m glad that you guys did a video on autoimmune disease to spread awareness on all the different types of diseases. In 2010 I was 19 & got diagnosed with rheumatoid arthritis & honestly I didn’t know this could happen to teenagers let a lot kids I always thought this was an elderly sickness but boy was I wrong.

  16. The Lupus story hit home. My cousin died a year ago because of her Lupus. I always remember her being happy and positive but I also watch her struggle and in pain. She had bruises and scars from Diálisis but she was strong and a fighter. I can’t imaging living with the daily physical pain and then also struggling with your mental health. I don’t know how she managed. I hope to see more awareness for this disease so we can find a cure. I miss her everyday but I know she’s watching from above living pain free💕

  17. I have Hashimotos and Graves Disease which is also an autoimmune disease. It’s so important to educate the masses because I feel autoimmune diseases are “silent illnesses.” We look perfectly fine but on the inside our body is attacking itself, not only physically but mentally. Thank you Buzzfeed!

  18. I have Hidradenitis Suppurativa. I'm not completely sure if it is an autoimmune disease but research/people say it may be. It's linked to other autoimmune diseases. I just thought I would share because theres a lot of people that don't know this disease exsits and there's not a alot of reserch and no cure for Hidradenitis Suppurativa. And it sucks that there isn't because so many people suffer from it and it's so f***ing painful when you get flare ups.

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